Research organizations agree to share genetic data

The NIH has joined about 70 medical, research and advocacy organizations across the globe in an initiative to create shared databases of genetic and clinical information. The coalition will agree on standards for representing and sharing genetic data as well as for obtaining patient consent. Researchers hope pooled data will allow them to understand and treat rare genetic mutations in cancer, pediatric diseases, heart disease and other conditions.

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New York Times (tiered subscription model), The · Nature (free content)

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