NIH promotes data sharing through Down syndrome patient registry

10/29/2012 | Healthcare Informatics online

PatientCrossroads has partnered with the National Institutes of Health to create a Down syndrome patient registry to organize contacts and data exchange among patients, families, parent groups and researchers. "The registry links those seeking volunteers for their research studies with those who most stand to benefit from the research," said Dr. Yvonne T. Maddox, deputy director of the NIH's Eunice Kennedy Shriver National Institute of Child Health and Human Development.

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