NIH promotes data sharing through Down syndrome patient registry

10/29/2012 | Healthcare Informatics online

PatientCrossroads has partnered with the National Institutes of Health to create a Down syndrome patient registry to organize contacts and data exchange among patients, families, parent groups and researchers. "The registry links those seeking volunteers for their research studies with those who most stand to benefit from the research," said Dr. Yvonne T. Maddox, deputy director of the NIH's Eunice Kennedy Shriver National Institute of Child Health and Human Development.

View Full Article in:

Healthcare Informatics online

Published in Brief:

SmartBrief Job Listings for Health Care

Job Title Company Location
Vice-President of Technology and Regulatory Affairs
AdvaMed
Washington DC, DC
Sr Product Manager Global Marketing (US/DA/00/0085/SL) - 14000009V3
Abbott
Chicago, IL
Director of Medicare Products
Bluegrass Family Health
Lexington, KY
Director of Medicare Products
Bluegrass Family Health
Lexington, KY
Vice President, Information Technology
HealthPartners
MN